You may find the following published books of interest. These books are available via Amazon.co.uk. Please visit Amazon via the following link buy.at/dfsg and then choose the amazon link. This will ensure you will help support the charity (and you still pay the usual great value price from Amazon).
Dealing with the Family's Economic and Practical Needs When a Child Has a Chronic, Life Threatening or Terminal Medical Condition
Sir John Harvey Jones (Foreword), Mairi McElhill Putt
Abilities, Interests and Talents of a Young Disabled Man
Jonathan Colchester
One Family, Genetic Identity, and Muscular Dystrophy
Penny Wolfson
Helping you to understand Duchenne Muscular Dystrophy
Find out who you can contact for help and advice.