About DFSG

What is the Duchenne Family Support Group (DFSG)?

The Duchenne Family Support Group (DFSG) exists to provide support for families.

The DFSG was started in 1987 by a small group of parents who had children diagnosed as having Duchenne Muscular Dystrophy (DMD).

Since then, the number of families has increased dramatically and contacts have been established all over the country, as well as abroad, creating a wealth of information.

The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals.

The DFSG helps bring families together for mutual support, sharing of information and experience, and social activities.

Subsidised Annual Group Holiday

We have a holiday at home and abroad each year. The accommodation is fully equipped for the disabled and there are lots of activities for all members of the family.

In the past our holidays have provided activities such as canoeing, abseiling, art, music, wheelchair races and swimming. Holidays abroad have included Euro-Disney, France, Rotterdam, Holland and Belgium. Activities were provided for the whole family to enjoy.

Family Outings / Events Each Year

Every year we go sailing at Bewl water and other events have included, for example a visit to Legoland, a steam train ride and party, a day at the Blue Planet Aquarium, a visit to the Model Car Exhibition, a trip to Holiday on Ice, bowling, local coffee mornings, tea-parties and picnics.

Workshops And Annual Conference

With the help of relevant professionals, we can provide workshops in such areas as adaptations, physiotherapy, complementary medicine, equipment, lifting and education.

We usually have guest speakers workshops and the opportunity to socialise at our annual conference.

Telephone Support

As well as the office telephone line, we have the family help line. Families can ring at certain times and speak to another family or, alternatively, they can ring the office about any questions or problems they may have, and we can also try and put them in touch with a family in their area.

DFSG Fund Raising

The group's main form of fund-raising in past years has been an annual sponsored bike ride.

However, with the expansion of the group and the increase in activities offered by the group on a nation-wide basis, our financial resources have been put under continued pressure. We are now relying more heavily on donations that individuals and organisations have been kind enough to give us and other fund-raising events.

Resources and Links

Resources and links of interest to members of DFSG and all those interested in or affected by Duchenne Muscular Dystrophy

How we spend your money

How we spend your money

We are funded entirely by voluntary contributions and every pound that you give helps us provide support and advice to families affected by Duchenne. We have a network of contact families around the UK and we operate a free helpline for families and professionals.