Resources and Links

Below are a few links to related websites that you may find useful.
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Campaigning and Lobbying

Organisations for other conditions associated with DMD


Equipment and care

Respite, hospices and help for carers

Special experiences and wishes

Willow Foundation

Willow is the only national charity working with seriously ill young adults aged 16 to 40 to fulfill uplifting and unforgettable Special Days that enable them and their families to reconnect and refocus on each other while enjoying an activity of their choosing. A day that will create memories they will all treasure forever. - See more at: