New information to help families from Muscular Dystrophy UK

Muscular Dystrophy UK has launched the second edition Adaptations manual: for children and adults living with muscle-wasting conditions.

Families regularly approach Muscular Dystrophy UK with questions about the best adaptations to get for themselves and for family members. The second edition of the adaptations manual aims to answer those questions. Cathy Szeplaki, who contributed to the manual and has experience in neuromuscular occupational therapy, will also be hosting a Q&A about adaptations that will take place on 28th April 2017 at 12pm.

Claire, whose son Luke has Duchenne muscular dystrophy tells us her experience using the adaptations manual.

MDUK’s Adaptations manual has proven to be an invaluable resource to my family as we prepare to adapt our home to make it more accessible for our son, Luke, in the future. I thought I had a good understanding of what we needed, but the manual has helped me think about lots of things I would not have thought about. This could save us from additional costly alterations in future.

Revised by occupational therapists who work closely with families living with muscle-wasting conditions, our updated guide includes examples and practical information about what is available to families as well as an outline of the process of making adaptations to your home. The College of Occupational Therapists has reviewed and endorsed the guide, assuring its quality.

The information is practical and the authors have thought of everything to help us feel adequately prepared for the future. I feel much more confident to discuss Luke’s changing needs with our OT, it’s not easy to think of this when he’s still active.

The manual is easy to use and guides you through the whole process. You can pick and choose the sections that are relevant to you, and having everything together in one place makes life so much easier for a busy family like ours.
– Claire O’Hanlon, Northern Ireland

The revised adaptations manual covers a range of topics with updated information and new developments including accessibility requirements and information on technology around the home. Some of the areas covered are:

  • Adaptations to the kitchen, bedroom and bathroom
  • Access to the property
  • Environmental controls
  • Equipment for sit to stand
  • Applying for a disabled facilities grant (DFG)

You can download the adaptations manual in full here. Please contact us through info@musculardystrophyuk.org to receive the manual in hard copy.

Muscular Dystrophy UK’s Q&A takes place on 28th April 2017 at 12pm and our information line is also available by emailing info@musculardystrophyuk.org or calling 0800 652 6352.