News Archive

Our sponsored walk for DFSG

Back in March of this year, I decided to try and organise a sponsored walk to raise some funds for a Duchenne muscular dystrophy charity. I was made aware of the condition through my old school friend Johanna Jones, whose gorgeous son Archie was diagnosed some 7 years ago at the age of 2. Not only is Jo a great mum, but she's also been really inspirational with her tireless campaigning and involvement with DMD organisations.

Right to Breathe interview on Radio Sussex

Muscular Dystrophy UK's campaign 'The Right To Breathe' was kicked off on BBC Radio Sussex today (Friday 27 February 2015) featuring an interview with DFSG Development Officer Phillippa Farrant along with Nic Bungay, Director of Campaigns, Care and Information at the Muscular Dystrophy Campaign. Listen to the interview here. Acknowledgement and thanks to BBC Radio Sussex.

New Muscle Dream programme England V France at Twickenham 20-21 March

New Muscle Dream programme England V France at Twickenham 20-21 March

Muscle Dream Programme RBS 6 NATIONS: ENGLAND V FRANCE. Twickenham: Fri 20th MARCH – Sat 21st MARCH 2015 Incl 1 overnight stay at the London Marriott Hotel Twickenham, at Twickenham Rugby Stadium. NOMINATIONS CAN NOW BE MADE FOR THIS PROGRAMME - DEADLINE FOR ENTRIES - MIDNIGHT FRIDAY 27th FEBRUARY. Email your 150 words to: info@musclehelp.com by FRI 27 FEB. The RBS 6 Nations is about to kick-off – for those that LOVE ALL THINGS RUGBY, this Muscle Dream programme is for you! The Muscle Help Foundation has arranged a number of special surprises to give you a truly memorable rugby experience! Accommodation (fully accessible rooms) will be provided on FRI 20th MARCH at the stylish and modern London Marriott Hotel Twickenham offering superb facilities. The hotel is conveniently located as it is joined to Twickenham Stadium! SAT 21st MARCH is match-day (kick-off 17:00hrs) and our group will be in one of Twickenham’s pitch-side enclosures amidst 82,000 spectators inside the largest dedicated rugby union venue in the world.As part of this programme, all meals and refreshments are included. The charity will make a contribution towards travel costs. More...

Stix Summer Madness 2015 in support of DFSG

Stix Summer Madness 2015 in support of DFSG

Eastbourne drumming group 'Stix' held their annual 'Summer Madness' event at Sharnfold's Farm, Stone Cross on Saturday 27th June. A fun and festive day full of drumming, belly dancing, fire acts were enjoyed along with a set by Sussex function band The Review. £1000 was raised for DFSG and a similar amount for Eastbourne Food Bank.

Social and sexual needs of men with long-term conditions

Social and sexual needs of men with long-term conditions

Norah Fry Research Centre at the School for Policy Studies NIHR School for Social Care Research at the University of Bristol have completed a study into the social and sexual needs of men with disabilities. The project was undertaken with the support and involvement of the DFSG. Researchers looked at the views of 20 men, aged from 21 to 33, who have Duchenne muscular dystrophy. The study reveals that men sometimes found that social care took no account of their male gender and they wanted more support with social activities and sexual relationships. One participant said: “I think the actual impact of social care can be incredibly emasculating, if it is set up in such a way that it takes away your independence and your autonomy. It's not even gender neutral, because gender's not even in there.”