September 05, 2013 at 12:29 PM

A new area for the website launched today....

On Tuesday I was in Westminster at the launch of the All Party Parliamentary Group (APPG) report into access to drugs for rare diseases..

On Saturday we will be sailing at Bewl Water for the day, come and join us for a day of sailing and barbecue and meeting new people- all welcome

Off to Amsterdam on Monday - representing DFSG at a meeting with other European patient groups hosted by PTC Therapeutics looking at upcoming research and clinical trials


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