Just thought I would update you with a few details of the charity and what I have been up to on your behalf...

As many of you are aware DFSG is struggling a bit financially but members have rallied and we have had some lovely donations of money and organising of events from running half marathons to a Shadows tribute night so watch this space for details of events...please contact me if anyone would like to do anything else..

We welcome Sue Berry on board the team as new editor of the DFSG newsletter- our next edition will hopefully drop through your letterboxes sometime in April.... am sure Sue will introduce herself and share her background...

Still have spaces in the London 10k in July if anyone feeling energetic...

We will have our annual meet up at Bewl water in July too...details to follow...

Anyone wanting to escape these shores for a fun filled holiday in Brittany in May please contact us for further details- all adapted environment...

I was interviewed on local radio about the struggle still for families to get cough assist machines...please contact me if this is an issue for you...

I am off to a few meetings over the next couple of months including the next Skip NMD research update which sadly for me is being held in Sardinia....!!!!the things I do for DFSG!!

That is about it for now---watch this space for further updates.....