The Muscular Dystrophy Campaign has published three new guides highlighting the gaps in services for young adults with muscle disease.
The move from being a child to becoming a young adult is a challenging time for any young person. So much changes at this time - from the law, education, health and social care systems to the way people see you. And transition to adulthood for young people with muscle disease can be even more complex.
The Guide to transition for 13-25 year olds with muscle disease has been funded by Bupa Giving and offers support around issues experienced by young adults with muscle disease. It directs professionals involved in their care and gives general guidance for everyone affected on funding, lifestyle, medical, practical and social support issues.
The Becoming an adult report is based on crucial new research into the transition to adulthood for young men with Duchenne. The two-year study was funded by the Department of Health and carried out by David Abbott and John Carpenter at the University of Bristol. It was supported by the Muscular Dystrophy Campaign and the Duchenne Family Support Group. We hope it will bring public attention to the views, experiences and difficulties experienced by young men living with Duchenne and their families as they move from childhood to adulthood. It's essential reading for families and professionals alike.
Finally, the Becoming a man leaflet has been written especially for young men with Duchenne muscular dystrophy by Craig and Liam McLean and researcher David Abbott.
Please visit the Muscular Dystrophy Campaign website for further informatin and to access the guides available.